It came to my attention that I really haven’t given any information as to why I am blogging, and why I have chosen such a narrow subject about which to write the aforementioned blog
I’m Lina, a 24 year old Essential Thrombocytosis patient. Essential Thrombocytosis or ET is a Myeloproliferative Neoplasm (MPN). Basically it means that my bone marrow is extremely over-zealous about producing blood cells. Platelets in particular. I was diagnosed in 2005, and it has been a charming roller coaster ever since. Enough about me….now why I chose to whine in a public forum….
The short answer is…because I wanted to.. But the better answer would probably be that in the 6 years I have had this disease I haven’t really had much of an outlet to talk about it. My friends and family listen, which is nice, but sympathy really only goes so far. I attended a meeting in Chicago earlier this summer, and it was mentioned that other patients might enjoy hearing my perspective on things (as I would enjoy hearing theirs), so here it is. I hope that this will be helpful to others. If anyone has questions or would like to suggest a topic, feel free to leave it in the comments section.