Hello and welcome to my little blog here, and to what I like to call the “Reluctant Members’ Club”.
In this blog I’m going to be sharing my experiences, thoughts and feelings about my life with an MPN.
For those of you who do not know what an MPN is, I’ll briefly explain here. MPN stands for Myeloproliferative Neoplasm. Basically, this means overactive bone marrow (for a more in-depth definition check this link. There are 3 different MPN diseases, ET (Essential Thrombocytosis), PV (Polycythemia Vera), and MF (Myelofibrosis). I was diagnosed with Essential Thrombocytosis at the age of 18. I’m one of the lucky patients for whom this is not a genetic form. (2-3 out of ever 100,000 people.)
- ET, the bone marrow produces too many platelets,
- PV the bone marrow produces too many or several different blood cell types
- MF, the bone marrow actually becomes scarred and ceases to produce the proper number of blood cells.
These are just very rough definitions, for more information continue reading my blog, and also visit
- Google search *
Feel free to subscribe and share. Comments, feedback, and your own stories are always welcome! We may not have chosen to be members of this little “club”, but we can at least share our stories, and be there for one another.
*Please, when reading information found on the internet (including my blog!!!!) please thoroughly research everything, take several deep breaths, and take everything with a shaker of salt, and never make any treatment/diagnosis decisions without the consultation of a specialist (hematologist/oncologist).