Migraine – Question for MPN patients

So today is the 3rd day of a terrible migraine. Started with visual aura as always – picture the fractals of a broken mirror, and brightly colored, chaser style Christmas lights along the edges of each. This typically takes over my vision entirely. Starts out small, then increases to the point of not being able to see at all. After that my peripheral vision is usually gone for the rest of the day, on whichever side the aura started. Wednesday it started on the right, so my right side peripheral vision was gone the rest of the day. Which made driving home from work quite the (ill advised) adventure. I did go to work Thursday morning, but by 10 AM I couldn’t take it. The pain was really bad. Now I have a pretty darn high pain tolerance, so when I say it hurts, I mean to the point of being in tears, hurts. Thankfully I have a very wonderful boss, who could see how miserable I was and let me go home. I got home yesterday, slept pretty much all afternoon, the short spans during which I was awake, were very painful, spent mostly either crying or vomiting. The pain was (still is) terrible. One of the worst migraines I can remember having. The last one that was this bad, I was still living at home, and my mom actually took me to the E.R. 

I finally broke down and took a vicodin in hopes that it would help. All it really succeeded in doing is making me feel really dumb. Migraines make me stupid to begin with, add something like that and I’m totally useless. 

So now, getting to the point – My question for ET patients specifically – Do you all have migraines like this? Is this an ET thing?

Off to bed for now.

You are your own best advocate, if you don’t take care of yourself, who will?

 Until next time,