Just a quick little blog for right now…
I finally heard back from the NP at my Hem/Onc’s office. She agrees that it is probably time for another BMB. She hadn’t realized it has been 9 years since the last one. As for the way I’ve been feeling, she didn’t really have a whole lot to say on that. My next appointment is 8/20, so I’ll talk to the doc about it all, and pick his brain for a while. At the same appointment we’re going to schedule the BMB.
I also spoke with her about getting tested for the CAL-R mutation, so she is going to put in the order for me for my appointment in August. I’m pretty curious to see the results of that.
Are any of you CAL-R positive?
What about Jak2?
Remember to be assertive!
As always, you are your own best advocate. If you do not take care of yourself, who will?
Until next time,
2 thoughts on “FINALLY!”
I’m calr + ; no jak2
I have none of the mutations…my doctor calls it: triple negative