Today we’ll be talking about blood cancer resources. While there are many, we will be focusing on a few of the big online resources.
First, and my personal favorite: The MPN Research Foundation. Here you can learn more about each Myeloproliferative Neoplasm, find treatment options, patient stories, research studies, and support groups.
Next up is The American Society of Hematology. Here you can find information on ASH meetings, terminology, news, research, and patient resources.
Next is The American Cancer Society, where you can find information on pretty much all known cancers, health tips, support and treatment resources, available research info, and volunteer opportunities.
Another good one is The Leukemia and Lymphoma Society. Here you can find Disease information, donation opportunities, research and local branch offices
This is only a brief list of resources, but they are very reliable, and contain very good information. i would recommend that when looking for disease information, that you start with these places. They are very comprehensive sources of information.
Tomorrow we will be deviating from my original outline, because I feel compelled to make a post about fatigue. Fatigue is a HUGE problem for MPN Patients, and many other patients as well…but I think I need to post this one asap given some recent experiences I’ve had.
Until tomorrow,
Lina
[…] 7) Resolve to be an informed patient. Do research on issues that are concerning you. Now, this doesn’t mean consult random websites on the internet, but there are an awful lot of resources out there for you. […]
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